PROBE: Patient Reported Outcomes Burdens and Experiences Study

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The Patient Reported Outcomes Burdens and Experiences (PROBE) study group invite you to participate in a multinational, patient­-focused research study to investigate and directly probe patient perspectives on outcomes that affect your own life and care.

We are seeking input from both individuals living with hemophilia as well as those who do not personally have a bleeding disorder. The research will support advocacy to improve care for people living with hemophilia. We appreciate your willingness to participate in this survey. The survey will take approximately 15 minutes to complete. You will be asked personal questions about your health, your age, your medical history and its impact on your daily living.


The PROBE study group is a global team of investigators with administrative support from the U.S. National Hemophilia Foundation. Should you have any questions about the survey, you may contact the study team at or use the contact button below.

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